Human Research Ethics

This project is governed by the Human Research Ethics Committee at The University of New South Wales (Approval HC15354).

What does participation in this research require, and are there any risks involved?

Participants who decide to provide information to the study do so by participating in a focus group or interview or possibly both. During the focus group or interview, participants will be asked about encounters of stigma and discrimination and therefore it is possible that the research may cause some minor distress. However, we estimate the probability of potential psychological risk to be small. If participants become distressed, we will stop the focus group or interview and will participants with information about sources of local and national counselling and support, and other services that may be helpful.



What will happen to information about participants?

By signing a consent form, participants consent to the research team collecting and using information about them for the research study. We will keep that data for 10 years. We will store transcripts and audio recordings of the focus groups on UNSW servers that are password protected. All information will only be used for the purpose of this research study and it will only be disclosed with participants’ permission.

It is anticipated that the results of this research study will be published and/or presented in a variety of forums. In any publication and/or presentation, information will be provided in such a way that participants’ research findings may be published, but they will not be identified in these publications other than by a pseudonym. Third parties, geographical locations and services will be anonymised.



Who can I speak with about any concerns in relation to the project data collection and ethics? 

The person you may need to contact will depend on the nature of your query. If you want any further information concerning this project or if you have any problems which may be related to your involvement in the project, you can contact the following member/s of the research team:

Dr Max Hopwood, Research Fellow, Centre for Social Research in Health, UNSW Australia, +61 2 9385 6436,


If you have any complaints about any aspect of the project, the way it is being conducted, then you may contact: Human Research Ethics Coordinator, + 61 2 9385 6222,, Reference number  HC15354.